Survivor’s Remorse

Yep, that's about right.

Yep, that’s about right.

A year later, it turns out I’m going to live. At least for awhile (give or take the potential of getting smushed by a bus). Now what?

They say there are stages of grief. I probably experienced a portion of them all over the last 12 months following my cancer diagnosis. Denial and Isolation? Hell yeah. Anger? Absolutely. Bargaining? Kinda sorta. Depression? Sure, why not. Acceptance? Well, four out of five ain’t bad, right?

I named this navel gazing, insightful. narcissistic, self-absorbed site “A Blog Called Quest” because a: I didn’t have a better idea. Actually, there is no B. It’s just A. Well, A and the fact that these guys remain the greatest hip-hop group of all-time. So much for truth in advertising. It’s definitely a blog. A quest? Hmmm. Depends on your definition of the word. I could have called it “obvious midlife crisis hastened a bit by unlikely diagnosis of disease that sounds way scarier than it actually is” but the URL was just a little too long.

So what now? After 10 cycles of chemo (and two more to go by September) I’m as healthy as I’ve been since before my kids were born.I went back for a maintenance cycle last month. I’ve had oil changes that were more emotional. My disease isn’t the first thing I think about in the morning or the last thing I think about at night. Call it the upside of arrogance. I never worried that this thing would get me, even as I see others in the handful of Facebook groups I’ve joined struggle to repair their lives as the medicine that’s given me a second chance wreaks havoc with their own immune systems.

The default line here is I should be thankful, right?

A year ago I couldn’t climb the stairs in my house without thinking I was having a heart attack. Now if I do less than an hour on the treadmill or the sorority girl (note, that nickname came from a female cousin in law) errr elliptical machine I get cranky. I’m thinking about a 5K in a couple of weeks (my first race in a decade) and can’t wait until I become one of “those guys” who take their bike riding waaaaay too seriously sometime later this spring even if the truth is I typically get lapped by kids on tricycles.

I would love to sit here and tell you that I’ve figured it out, that I’ve figured me out. Yet I’m no closer now than I was the day my oncologist told me “Hey, you’ve got a rare form of incurable cancer but you’re going to be fine.” He was absolutely right of course, but reconciling two drastically different notions has been maddening.

Cancer got my father at 59. My brother-in-law at 35. Dad built houses. Bill was a teacher (and a good one). There is no explanation for what happened. How a non-smoker can be struck down in his prime by lung cancer is something I’m never going to figure out. How esophageal cancer turned a 6-foot-6, 230-pound titan into a graying, frail old man in six months is terrifying.

My experience has been far different. I’ve joked repeatedly that I have “JV” cancer. Most people think it’s me just being modest (important: as much as I try, modesty isn’t really my thing). I’ve sat in chairs next to folks nearing the end. I’ve watched the nurses come out wearing the blue scrubs with the chemo bags and tenderly administer it. I get four shots to the stomach and a four-hour drip of a drug that is basically little more than a reminder to my white blood cells to get to work and start kicking cancer’s ass.

It’s hard not to think about why I was spared. Why is my life more valuable than any those facing far more dire circumstances. It’s like watching a disaster movie where the entire planet is wiped out but hey, the protagonist is gonna live so really, everything is gonna be OK.

I wish I could tell you I’ve found my purpose. Lord knows I’ve been searching for one. If the last year has taught me anything, it’s that I have spent far too much of the first half of my life screwing around. And yet old habits die hard. I still play video games. I still obsess over what my professional contemporaries are doing (and just as importantly, what I’m NOT doing.) I still stare at my phone way too much, and while I’m becoming more of a grownup on Twitter, I’m still not exactly a paragon of responsible tweeting.

My smart friend Nancy (disclaimer, while this happens to be her name this is also a blatant ripoff of this guy’s work) says repeatedly “You had cancer, not a lobotomy.” Sometimes I’d almost prefer the latter (and my incredibly patient wife would agree). Far too often over the last year I’ve sounded like every politician who has ever promised “change” (no offense Mr. President) only to discover the mechanisms of democracy make progress a difficult and sometimes ugly slog (I’m looking at you Indiana).

I get told all the time that I’m being too hard on myself. That what I’m going through is completely natural, that I need to give myself a break. And I get it. Yet when I’m sitting there undergoing treatment and I see people who would likely switch places with me in an instant, it’s hard not to feel like every second when you waste not maximizing your life is a complete waste of everyone’s time.

There was a blissful stretch last summer where I really did unplug. I focused on my health and my family. I took time off work. I stayed out of the bubble I had lived in for far too long.

Then my numbers started ticking up. I felt my strength return. And the bubble returned, version 2.0. And I realized how incredibly fortunate I am. At my core though, it only made the issues I’ve struggled with for years seem only more urgent.

Every day I deal with intensified expectations. I want to be the best father. The best husband. The best writer. The best son. The best brother. The best (insert whatever I’m doing at a given moment). Every damn day. I can say unequivocally I am a better person than I was five years ago. At the same time that pursuit has made my awareness of my own shortcomings only more acute.

God didn’t spare me so I could win the Stanley Cup on my Playstation one more time. (At least, I’m figuring he didn’t). Trying to figure out what to do with the 40ish years I have left is perplexing. My greatest gift as a writer is my ability to get a handle on people. Whether it’s the best gymnast in the world or the kid at the end of the bench. I can ask the right questions, talk to the right people. And yet I’m no closer to getting the gears in my head straight than I was a year ago. Or five years ago. Or 20.

At least now, though, I’m trying. My family is in the process of joining a church, something my wife and kids have somehow taken faster to than I have. I’m trying to break out of my comfort zone by volunteering for a non-profit. I might not save the world. Not all of it anyway. But I will do my part if it freaking kills me.

Which, thankfully, blessedly it won’t. Not anytime soon at least.

Cancer might not be the best thing that ever happened to me, but it might be among the most important. To fully embrace my life, first I had to realize I might lose it. What a world. What a ride. The quest continues.

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2 thoughts on “Survivor’s Remorse

  1. Thanks for sharing the reflections in your both humorous and down-to-the-roots style. Loved this open conclusion, while I am here, trying to figure out where I am and where I am going 6 months after the diagnosis, and in the middle of treatments: “Cancer might not be the best thing that ever happened to me, but it might be among the most important. To fully embrace my life, first I had to realize I might lose it. What a world.”
    all the best for you. live & enjoy the quest ~

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