The trouble with Thanks

If you got the chance to jab me with needles on a regular basis, you'd be smiling too.

If you got the chance to jab me with needles on a regular basis, you’d be smiling too.

I promised them this post would come months ago, maybe it’s a tribute to the work of those two kind folks in that picture that it hasn’t. Sorry Mary Beth. My bad Dr. Mehta. A thousand apologies Sandy and Phil and Melissa and Michelle and Tani and Jen and Lori and everybody else who has jabbed my arm for blood, stuck a thermometer in my mouth, threaded an IV needle into my hand or laughed politely at the decidedly lame “hey, look at me, I’ve got cancer” jokes over the last nine months.

I’ve been too busy trying to reclaim the life you so carefully restored over the spring and summer that I haven’t had time to thank you properly.

Resiliency is a funny thing. I spent the first few months after my lymphoma diagnosis in March questioning everything: my health, my future, my relationship with my family, my commitment to my children and my  passion for my chosen profession. It wasn’t a midlife crisis exactly. It was more of a stop sign. Those thoughts had been building _ much like the disease in my bone marrow _ for years. My diagnosis simply crystallized them and my treatment gave me time (too much probably) to try and figure out who I am, where I’m going and who, exactly, I’m taking with me.

Then, sometime in July, things turned. I started producing healthy blood again. My energy level went up. I began regaining the 10-15 pounds I lost. All the stuff I tried to put in perspective suddenly became important again. How many twitter followers I had. My place in the cliqueish hierarchy of the press box (and my company for that matter).

The same old crap. The same old concerns. All the stuff I thought I was ready to ditch because there was a chance the rest of my life would be measured in years and not decades. The small stuff became big stuff despite my best efforts. The perspective I was searching for vanished. It was back to the grind, back to the next story, the next mortgage payment, the next chore on the to-do list that regenerates itself relentlessly day after day after day.

On the final day of my eighth and final cycle in September, I had this plan that I would do a victory lap around the doctor’s office, sprint to my car, give Waldenstrom’s Macroglobulinemia the finger and put it in the rearview mirror for good.

It didn’t quite go like that.

Tani patched me up after a four-hour drip of Rituxan and my 32nd shot of chemo and I quietly slipped out. Nobody dropped what they’re doing. Nobody stood up and slow-clapped me out the door. When I turned to look back the half-dozen nurses who make a living keeping the living alive were going about the business of providing comfort and confidence to a never-ending stream of terrified, defiant and confused strangers.

Sorry ladies. I meant to say I owe you one for helping save my life.

If you’d seen me in my car afterward, sobbing uncontrollably in the front seat as the realization that “holy crap, I just spent 24 weeks getting treated for cancer and I think I’m going to be OK, how in the hell did that happen” washed over me, I hope you would have taken it as a compliment.

You made it bearable. On some days, you even made it enjoyable. (Well, that and the free crackers). You took one of the most intimidating processes of my life and made it seem routine.

It’s a pretty remarkable mind trick considering most us don’t want to be there. Not for a second. Not for a minute. To be honest, those of us who jot our names on the patient sign-in sheet are in some form of shock.

It’s surreal that it has come to this, trudging into a bland office building and wading through a crowded waiting room to a sea of tan leather chairs where we sit and wait for medicine that _ hopefully _ will work. We fixate on our blood counts, our symptoms and our prospects. It should feel like purgatory. It’s because of your mindfulness it does not.

You try to get us to talk about our kids, our jobs, our plans for the weekend. Anything to distract us from the battle going on inside our bodies. You study charts, consult with doctors and check our progress while trying to make sure we don’t feel like so much sickly cattle, no matter if we’re the first or the 40th patient you’ve seen that morning.

While we won’t tell you this because this just isn’t what we do, we are in awe. I am in awe. I cannot comprehend the responsibility that comes with your job.

No matter how much I try to convince myself that what I do is capital I Important, if I screw something up a fix is only a couple of mouse clicks and keystrokes away. In the end it’s just nouns and verbs, subjects and predicates, hanging clauses and occasional grammatical errors. My idea of pressure is looking at a blank screen with five minutes to go in whatever game I happen to be at. (NOTE TO BOSSES: that like almost never happens. Honest).

I cannot fathom a job where every decision has to be right, one where there are real, actual consequences for any tiny mistake.

A good friend of mine worked in newspapers into his early 30s, when he had a heart attack. He was so touched by the care he received he left the business, moved back home with his folks and spent a handful of years getting a nursing degree. I thought he was insane. (Colby, technically you might be). While there is zero chance of me trading my laptop for a pair of Crocs, I can see why he made such an abrupt sea change.

Look, the medical system in this country is screwed up. The fact it cost $21 grand for a doctor to look at my blood and figure out what type of lymphoma I have is insane, for starters. And the idea that health care is a privilege and not a basic human right is beyond me. But that is paper and policy. It’s not people. And it’s the people as much as the medicine that keeps us going.

I head back to those tan leather chairs on Monday, for the first of four “maintenance” treatment cycles over the next 12 months. I am (mostly) healthy. I am (usually) happy.

And before I forget and get too caught up in the frustrating business of being me, know that I am thankful.

See you in a bit ladies. I’m almost looking forward to it. Almost.

Just careful with the needles, OK?

Here’s Shawn, Nate, Wanya and Mike to play us out.

 

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5 thoughts on “The trouble with Thanks

  1. So glad that I was never ever appreciated for the 10 years of caring, hard work and dedication that I put in to the cancer center. The entire reason that I left.

    • Jennifer, it’s funny (and sad) that you say that. I was talking to my oncologist this morning and he was talking about the blog post (which he shared with the nursing staff). He mentioned how he’s not their direct supervior, that it’s the main office in downtown Pittsburgh that runs the nursing dept. at the center. All too often, he said, all they hear are the negative things, that there is very little positive re-inforcement from their supervisors or the patients. It’s sad. Look, bad nurses suck. I’ve seen it first hand for some of my family members, but the staff at my cancer clinic has been off the charts.

      • Will, I took care of you everyday at the cancer center until I had my baby. I’m sure you remember me. I was pushed out after 10 years of dedication, compassion and caring toward every single patient that I made contact with. It was very sad and difficult to know I was pushed out from a job (no, it was more than a job) that I truly loved.

  2. Will, I love it!!! Thank you! I can’t tell you how much I have enjoyed reading your blog. It is wonderful to hear your perspective on cancer and the fight. I laughed, I cried, I learned a little more about what our patients are feeling while they are getting chemo. It has been a pleasure jabbing you with needles!!

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